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[quote=Anonymous][quote=Anonymous][quote=Anonymous]OP, I came across this thread while doing the search for my DD. She had pretty much all the signs that your DS had with the same time line. We did pretty the same you did, noticed something wasnt right around 16 month, got Infant and Toddler Connection evaluation at 17.5 months, got ST and OT for almost 3 months before being seen by a developmental ped at KKI (at 21 months). DD was given a normal IQ, MERLD, with features of AS vs. ASD diagnosis. The dev. ped referred us to CARD for ADOS and we are waiting for CARD to contact us for the testing (was told it would take 2-3 months to get an appt for ADOS). We just started mainstream preschool (4 hrs a day) for her with the hope that she will get more peer interaction. We stopped ITC's ST and OT and are doing private ST for now.

I've been combing through the forums for treatment experience. This forums has wealth of experience and your thread is one of the most useful ones. [b]I saw the post about NIH study and wondered if we should look into that while waiting for CARD[/b]. Our main purpose is to get the most accurate diagnosis possible in order to find the appropriate intervention for our daughter. I hope you still follow the thread and could update your DS progress. Thanks![/quote]

I'm one of the people that posts about our very positive experiences with NIH research studies.  My SN kids are now 11 and 8.  The older started in NIH studies at age 5 and the younger started at age 2. The first study was for ASD and/or other developmental delays.  My younger DS did not meet the criteria for ASD but did have delays significant enough to qualify under 'other dev delays'.   Each year, those reports become more and more valuable - especially for for my youngest whose challenges require more intense interventions.  The reports have been key in documenting their needs and getting services through the school system.

I don't know what the right word is but (for lack of a better one), I'm so proud and relieved that I pursued those evaluations from NIH.  We often beat ourselves up because we didn't do something earlier, feel we should have done more or done something different.  I am filled with relief that I signed the boys up for those NIH studies.  [/quote]

Thank you so much for sharing your experience. I will seriously look into this.[/quote]

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