Reply to The Kids Who Beat Autism: New York Times

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]And it's not cancer. It is a brain disorder, like a brain injury or having a stroke.  There are many, many people in the world who recover from a brain injury or stroke.  Most don't recover fully, but some approach a full recovery.  It takes a lot of luck for that to happen, but who the fuck are you to tell people that their kid can't be the one in a million who gets lucky?

I'm sorry that your kid didn't recover as much as you hoped, but other people have had better luck. [/quote]

Again, this isn't the same.  You are comparing apples to oranges.  You are really minimizing the situation. You cannot recover from autism.  If you do, you were misdiagnosed.[/quote]

No where in the diagnostic criteria for autism spectrum disorders is the label "uncurable."  It's not a diagnostic criteria.

There is good research that shows that a small percentage of kids recover. Most kids don't recover fully, but that isn't a reason to tell other parents that their child is hopeless. Early diagnosis and intensive intervention create optimal outcomes and allow a small number of kids to lose the diagnosis. At least some of those kids are not misdiagnosed.

There is a good summary here: http://link.springer.com/article/10.1007/s10803-006-0340-6

Another good study by John Hopkins researchers found that about 4% of kids diagnosed before age 3 move out of the diagnosis.  (They didn't have an opinion on misdiagnosis vs. benefits of early intervention.)

http://www.ncbi.nlm.nih.gov/pubmed/22580734

For kids who move out of the diagnostic criteria there are several factors which seem to appear: 1) they have normal (or better) IQ; 2) [b]they are more towards the HFA/Asperger's/PDD-NOS end of the diagnostic criteria[/b]; 3) they have better muscle control; 4) they get intensive early intervention.

There also isn't evidence that shows that ASDs are diagnosed in numbers as high as the percentage of kids who move off the spectrum (7 to 17%).

[/quote]

Are the studies talking about Asperger's/PDD-NOS as part of ASD or just Kanner autism?  All the kids I know with a Asperger's or PDD-NOS dx, now ASD, all got there diagnosis when they are older, 4+ yrs old.  I read elsewhere that the avg age of an Asperger's dx was 8 yrs old although there is now a push to find these kids earlier so they can get early intervention.

I'll be honest, I wouldn't be able to tell if these kids at our school had any diagnosis at all if not told by their parents...  and I'm not the only one either b/c many had gone to another charter, Bridges, for preK3 and that school which is known for their SNs services had not been concerned enough to suggest an evaluation or interventions.[/quote]

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