Reply to Is Fibromyalgia Reall a Thing?

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[quote=Anonymous][quote=Anonymous]OP again. Lots of interesting posts here, thanks. As I said, my friend doesn't really fit the profile; she's 31 and very thin, probably too thin.

The other big thing that makes me wonder, probably the main thing, is that she has/had ALL (a form of leukemia). She went through lots of brutal treatment and is in remission, so I tend to think that is more likely to be the cause of her symptoms.

I don't want to waste time going in a potentially bogus direction and wanted to get a feel for the validity of fibromyalgia as a diagnosis. It sounds like the jury is still out. Good luck to all of you that are suffering though.[/quote]

I don't look like I 'fit the mold' either.  My fibro started when I was 27.  I am very young looking, fit on the skinny side, never been diagnosed with any mental health issues, don't have any pets (why that matters is beyond me), and I've always been big into nutrition and "whole" foods since even before it became a movement.

Fibro is tricky because it can hit anyone at any time.  It took a very long time for me to get a diagnosis.  Docs kept brushing me off as being just a tired new mom, then as my kids got older they decided I had depression because I just didn't "look", to them, like I was in pain.  One doctor even ordered an AIDS test, because that seemed more likely than fibro to him!  Didn't matter that I've been married to my non-cheating husband for over decade. Never mind the fact that I've always been active and now I had to give myself a pep talk just to take a walk or that I have certain areas that on my body that are alway knotted up no matter what therapy I'd tried.

Also once you have this diagnosis, any problem you have in the future will automatically get lumped into the "well, it's your fibro" category.  I had a torn ligament in my knee, that the docs kept ignoring because they said it was my fibro.  I had to demand an MRI to prove otherwise.  When you have fibro, you know the difference between your fibro pain and other pains.  But it's really hard to get docs to understand that.

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