Reply to Is Fibromyalgia Reall a Thing?

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[quote=Anonymous]Chronic pain is a horrible thing to experience.  For many people, fibro patients look perfectly normal and that leaves others wondering how could they be in pain.  Medical personnel often hesitate to diagnose fibro because there aren't any definitive, quantitative blood tests (or any other tests -- CT scan, MRI) that say "Yes, this is Fibro!"  The fibro tender spots test doesn't seem too reliable to me.  Different doctors, different pressure levels has never seemed all that reliable to me, although my rheumatologist has done the test and I had lots of tender points.

I'm not sure I believed fibro was really until I started experiencing pain.  One day on a plane, I starting experiencing pain in my legs, out of nowhere.  It continued on from there.  I am not overweight nor have I been diagnosed with any psychiatric disease.  I do have a cat, but I don't wear a wrist brace.  I can't take Lyrica or Neurontin -- I am so dizzy and sick I can't stand up.  I tried Cymbalta which was a lot like taking amphetamines must feel like.  Tramadol (a friend of opiate pain meds) did nothing for me and it is frequently prescribed for fibro.  It is supposed to be less addicting than other opiates.  The research seems to be out  on that.  I manage my disease by trying to eat well, exercise and generally monitor my fatigue levels. I take Advil or Aleve or Tylenol for pain and it doesn't always work.  I have a prescription for Vicodin for extreme pain.  I think I have taken it maybe three times in the last four years.  I don't go to the ED for pain management; I go to the rheumatologist.

Fibro is real, but no one can convince you of that.  For all the non-believers out there, I would hope you can respect the people (I mean people you know well, IRL) who have pain, even if you think it is BS.  [/quote]

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