Reply to has anyone on here terminated due to a positive T21 result?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]I am so sorry that you are going through this.

I thought I'd share a blog in case you haven't heard of this one before. The young mother's second child has DS and she had no idea until she gave birth. It's a very inspiring and loving blog. I don't have a child with DS but I find this blog wonderful to follow and makes me want to be a better mother.

Good luck to you:).

http://www.kellehampton.com
[/quote]

I know you mean well, but Kelle does not give a realistic portrayal of life with a child with DS. She gives no insight into what they've had to do to get her therapy, any milestones she's missed or been delayed on, etc. etc. Her child appears to be thriving with minimal negative side effects of having DS, but that is not the case for all children with DS. I have a family member whose son has DS and it has been lots of heart surgeries, many, many delayed milestones, and a fight to get certain therapies. I don't have an opinion one way or another if OP should terminate as I do not know the full story of her life or capabilities, but I do not think Kelle is the direction one needs to go when trying to make a tough decision like this. It shows but ONE possibility of what life could be like, and Nella is only 3- who knows what lies ahead. [/quote]

Not sure if anybody else has said that, but the problem is that the range of outcomes for children with DS is vast. It is totally unpredictable in utero how the trisomy will affect the child. [b]Some children with DS are high functioning, others stay barely alive. Hence the wide variety of opinions on how wonderful or difficult it is to raise a child with DS. [/b]

As for the original question, I don't think doctors would terminate based on MaterniT21, but follow up with a CVS or amnio to confirm.

OP, don't freak out yet. I had a 1:50 risk for each of my twins just because of my age, so there was a 1:25 chance that one of them would have a trisomy. I had a CVS. They are both chromosomally normal, and chances are, your child will be, too. Best of luck.[/quote]

And it should be stressed that the range of outcomes is not primarily a question of intervention. It's not like if you do all the right things and get the best treatment, your child with Down Syndrome will be high functioning. The point is that the trisomy can express itself in different ways. Therapy can improve things for any affected child, but some kids with DS have vastly greater possibilities than others.[/quote]

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