Reply to Sudden onset water weight gain in 20 y.o.

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[quote=Anonymous][quote=Anonymous]OP again. According to Chat GPT, symptoms point to POTS (already diagnosed), Mast Cell activation syndrome, and Chronic Fatigue Syndrome. The conditions seem quite similar, and not much by way of treatment options. Just managing symptoms.

Hypothyroidism also came up, but DD’s TSH is normal.

Sudden edema by itself could be caused by heart or kidney problems but initial tests all are normal. Understood that we need to dig deeper with new PCP and cardiologist. [/quote]

None of those disorders would cause the sudden edema.

What blood work did they do beyond a complete blood count? For a kidney problem she needs a comprehensive (not basic) metabolic panel and a urine test. These are common, cheap tests, and if they are negative, you are kind of done with ruling out a kidney problem and you can focus on the heart angle.

If the doctors won't order these really basic tests, order them online from Quest or Labcorp and have DD get the blood draw done at their lab.[/quote]

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