Reply to Sudden onset water weight gain in 20 y.o.

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]This is OP. Daughter went to the ER yesterday at my urging.  Basic labs (including thyroid) and EKG were normal so they wouldn’t pursue or refer for further tests like echo, ultrasound around lungs, nephrology work up etc. They didn’t have an answer or concern about the 20 lb water weight gain, other than they noted edema BLE in her chart.  The primary complaint they noted is anxiety. This has been our experience with POTS for the past 8 or so years. No answers and mostly all in the head (except that there is in fact edema and 20 lb of unexplained weight gain in 2 months). [/quote]
This is infuriating. Did they really say that edema and 20lbs of weight gain is no big deal? Or that they don't have an answer for it. She needs a doctor who takes her seriously, and/or an advocate who refuses to leave until they do a proper work up. Of course she's anxious...she has gained 20lbs of water weight with not explanation!!

Did the basic labs include liver and kidney funciton?[/quote]
I'm not an MD, so take this with that caveat. But I've spent a lot of time around medical professionals (both parents are MDs), and I'm a scientist who is used to analyzing data. The fact that they are using normal EKG and BW are gates for further investigation sounds insane given that your DD has a visible symptom that is best explained by cardiovascular or kidney issues. AFAIK there is no evidence that this kind of edema can be associated with POTS or the salt pills she is taking, so the POTS seems like it's unrelated.

I'm just looking at the information you are sharing, and it's not logical. I have been in a medical situation like this, where doctors (even fancy specialists) were telling me things that just sounded illogical. I had an eye infection that wasn't responding to anything, and a doctor said, 'Well, we've tried a lot of things so let's just stop all treatment and see if that helps." Luckily a family friend who is an eye doctor was helping me, and he was like that's the opposite of what to do, and he took over my care remotely. To me, just looking at facts, what the ER docs are seeing sounds like the opposite of what to do. There is no rule that says that a normal EKG can't be associate with an abnormal echo. And if there is an indication of potential heart disease (severe edema), then further testing should be warranted.[/quote]

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