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Kids With Special Needs and Disabilities
Reply to "Possible absence seizures"
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[quote=Anonymous][quote=Anonymous]First of all, kids with ASDs have a huge propensity for seizure disorders. I think its 25 to 30%. (Attention, 15:34) [b]before you jump down my throat, I know OP didn't mention an ASD, but she did mention SN[/b] and if she is a teacher of kids with SN she has surely had this issue flagged for her.. Many of us do have children with ASDs, so thats the reason we are more attuned to it and our kids' teachers may be more attuned to it. I have two sibs with ASDs and they both have seizure disorders. I know others. Thats why so many of us are familiar with it, because this is the SN section, not because of an "east coast thing." Second, the OP was going to talk to the nurse, so this wasn't about a teacher taking it into her own hands. I don't know what politics have to do with it. I'm as left wing as they come and I'm absolutely certain that if the nurse at my DC's school suspected an absence seizure, I would want her to tell me. Nothing nanny state about it. It is incomprehensible to me why everyone is so OFFENDED by someone with medical training point out a possible issue. So lets lay out why early intervention for absence seizures is critical. First of all, they absolutely can be a sign of a tumor. I am the PP whose friend's child was saved because the school nurse had the conversation that seems to offend so many of you. Second, absence seizures can develop into grand mal seizures if untreated. This is what happened to my brother. Grand mal seizures can cause serious damage to the heart. I know a family that had a child with an ASD who died during a seizure. And i think if parents aren't told the reason why they should have it checked out, they may not. Not everyone knows what an absence seizure is or that it would be what the nurse was concerned about. Some of you have accused me of being hysterical and bringing on some kind of nanny state affliction. What I don't understand is how the downside of having the nurse flag it (as in "we are seeing something that could be an absence seizure, we don't know, please check it out") outweighs the risk of not being explicit about the concern with the parent. What is the downside? Annoyance? Your feelings might be hurt? You feel intimidated by the school or it makes you anxious to have the nurse say such a thing? you resent it? The child may turn out not to have anything at all (I say "yay" to that -- a happy ending.) Do any of those things come close to outweighing the risk to health and even life thats at stake here.[/quote] No, she did not mention SN at all. See her original post below. She presumably posted here thinking she'd get reasonable advice. For the most part she's been proven wrong in that regard. [quote]I am a teacher and I am concerned that one of my students is having repeated absence seizures. Of course, I am not a physician, but what I've observed is very similar to what I've read about and seen on youtube. I am going to speak to the nurse, and then also to the parent (just saying "here is what I have observed.") Unfortunately, the parent is very poor and has a very limited education. What would you parents out there recommend for a teacher in my position?[/quote][/quote]
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