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Kids With Special Needs and Disabilities
Reply to "At what point do you give up?"
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[quote=Anonymous][quote=Anonymous]OP, this sounds really hard. I haven’t been exactly where you have been but I will offer my first thoughts most as commiseration. I have an older child with SN and a younger child with a physical disability. The way doctors and professionals have talked to us about the two different scenarios is night and day. With my child with SN we were given constant scare tactics and told we absolutely had to do a million therapies RIGHT NOW. Not everything was evidence based but if I was a decent mom I would do ALL the things. For my child with a physical disability everyone comforted me and counseled acceptance. Some interventions helped my Sons child, some were exhausting (to both me and them) and frankly their growth has been different than what people seemed to predict. In someways better in others the struggles are still there. I think because some parents are in denial about their child’s SN doctors tend to use a lot of scare tactics and come across more definitively than they should. It’s ok to cut back. It’s ok to accept some things you never thought you would. It’s honestly not entirely in your control. Don’t sacrifice your relationship with your child for hopes that they might be different. I hope you can get more help, whether that’s respite care, a different setting at school or something. Maybe therapy for you, too. That’s helped me a lot.[/quote] It sounds like you were influenced by the whole dogma of “early intervention NOW or the window will close!!!” It is so important for SN parents to realize that their kids childhood is also a childhood and not a disease to be treated. [/quote]
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