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Kids With Special Needs and Disabilities
Reply to "Camp fail - give feedback or not?"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Op here - whoops, this thread went off the rails. Anyway my question was whether it was worth telling the camp that this approach gave my kid a panic attack. I guess I wasn’t clear in my wording. Apologies for starting a flame war. In the end, I had a 2 min chat about autism, panic attacks and sensory issues and everything was fine after that. Yes, it was disclosed to camp that DD has ASD. Inclusion and all. And ASD DD was not the child misbehaving. It was another kid. Too much chaos, loud sounds, and being worried about the other kid was going to jump on her - set her into her version of an ASD meltdown —- which is covering her ears, cowering in a corner and rocking. She’s pretty good at holding it together in public but sometimes it’s too much. My kid is 100% honest to a fault - it’s one of her ASD traits. We were able to dissect the situation this morning to help kid understand what may have triggered her panic and what kid can do next time they feel overwhelmed. I’m pretty sure there were some trolls having a bit of fun with their interpretation of Autism on this thread. But, for those who “get it” thank you. It’s hard navigating a world that touts inclusion but then says “you are the problem” when you ask for a small accommodation because of your disability. It’s kind of like saying “people in wheelchairs shouldn’t get access to ramps or elevators because it’s their fault they can’t walk up a flight of stairs.” No! That’s why we fought so hard for the Americans with Disabilities Act. Ok, now tell me I’m a bad parent because I helped my 8 yr old. I mean it’s not like autism comes with communication challenges…oh wait, it does…[/quote] Thanks for the follow up. I don’t think it is unreasonable to ask for a quiet space for her if she gets overwhelmed especially if they bill themselves as inclusive. I’m glad she is going back. She should not be punished for getting overwhelmed. That said, I don’t think you can expect camp will be free of noise and chaos. [/quote] Op here - thank you. The accommodation was to allow her to take a break and do a quiet activity like coloring for a few minutes if she felt overwhelmed. There was no expectation on other kids accommodating or not being typical kids. [/quote] This child needs a 1:1 or a special needs camp. You have described behavior outside the realm of typical even for ASD at age 8. [/quote] wtf?? Being able to take a quiet break is absolutely standard and not outside the realm at all. What is up with you people and your very strange beliefs. Is it that you have kids who are not autistic but you got them diagnosed? A quiet break is also pretty easy for a camp to implement. If the camp billed itself as inclusive I don’t think that is asking for too much. [/quote]
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