Reply to More evidence for folate malabsorption in Neurodivergent bodies

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Reply to "More evidence for folate malabsorption in Neurodivergent bodies"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]I’ve looked through MAPS website but couldn’t find a provider who has had experience with prescribing Leucovorin. Do you mind sharing who prescribed for your son?

My daughter’s FRAT test came out positive (I convinced my ped to order the test although I paid all out of pocket) but I’m completely lost in finding a doctor who can prescribe. I found one developmental pediatrician who said she’s done it before but she completely ghosted.

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This gives me strong MAHA vibes. you should probably save your money for therapy instead of this. The fact that you cannot find a doctor to prescribe this stuff should tell you something …[/quote]

Hello
This is OP. I have not been reading this board for a few months.

We are in montgomery county. We did find a provider who ordered the tests. One child came back positive,  one negative.

To address the question about doctors who can prescribe leucovorin- any doctor can. They "dont know about it," not because its a scam but because its entirely novel. You may find better results by going to a neurologists but literally any doctor can prescribe leucovorin. 
If you find your doctor will not sit and read the studies and understand the very simple dosing,  then this doctor shouldn't be treating your autistic child.

The science behind this has been published in top peer reviewed journals. I can't imagine knowing your child may have an immune disorder that is causing a vitamin deficiency and not testing/treating it.

For our son who tested positive we have seen great improvements in communication, experience and mood.

I will do an AMA here if there is interest.

The main take away is that if you have an autistic child you must get them tested for folate receptor alpha auto antibodies  via the FRAT test which is available through fratnow.com but must be ordered by a physician.

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