Reply to SN parents, why don’t you disclose or share?

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[quote=Anonymous]OP - what you experiencing those afternoons when you were providing care is what life is like for us all the time. And it’s a moving target. Things are often hard for our kid and we don’t know why and can’t always anticipate how it will go. We could tell you she needs Lays and she could decide that morning that she’ll never eat them again. We could tell you she won’t eat fruit and you could offer kiwi  and she might gobble it all up and blame us when we arrive for never having served it before. Our kid is difficult. We are making all of this up (parenting) as we go along. That’s what caring for our child involves. There’s no magic set of accommodations that will make her NOT difficult. She will likely always be at least somewhat difficult. Sometimes you or she will stumble into things that will work. Sometimes you will do things that always worked before and they will no longer work. We don’t necessarily know much more than you did in that moment. Some families have yet to figure out that this cluster of difficult behaviors has a diagnosis. [/quote]

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