Reply to Desperate for referrals. We can’t live like this anymore.

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[quote=Anonymous]It's an awful way to live. Make sure all possible physical causes are ruled out - irritability is a sign of celiac disease in children, for example, and getting that diagnosed was one piece of the puzzle for our rage-y DC.

(@PP whose DC was borderline low for several years: anemia is another celiac symptom - if that hasn't been ruled out for your DC (full celiac panel, not just TTG-IGA), it might be worth investigating.)

I second the PPs who asked about strep and PANS/PANDAS (another piece of the puzzle for us); IANAD but it might be worth trying a few doses of ibuprofen (anti-inflammatory) to see if that helps. If it does, then it's possible that your child is in non-obvious pain (headaches?) or has some kind of inflammation issue (PANS/PANDAS?) or both. (I believe Ross Greene's maxim that "kids do well when they can", and if they cannot, then there is some issue they cannot manage going on. You've probably already read The Explosive Child but if not, I highly highly recommend it.)

Not all doctors "believe" in neuroinflammatory issues like PANS/PANDAS (? so weird to me, with Stanford, JHU, Mass General, etc. having PANS/PANDAS clinics...) so you may have to do some extra pushing to get it evaluated. It might not be your issue at all, but it's worth a quick review of the symptoms list to see if it describes your DC.

I wish you luck and a quick road to healing and peace for your family.[/quote]

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