Reply to Latest CDC number 1 in 36 children diagnosed with autism

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]The tone of this whole thread is really disappointing, coming from someone who was recently diagnosed as a 38 year old successful adult. Having a diagnosis and knowing why the world has always seemed so different for me means the world. But my “quirks” are precisely why I was very good at school and now have a very good job. There’s some argument that parts of autism were evolutionary advantageous. No, I don’t want a cure. I am happy diagnosis rates are going up so that kids don’t have to wait until nearly 40 to understand themselves. Acceptance and changing norms is absolutely what’s needed. Let kids unmask. [/quote]
LOL you have got to be a white man. For some of our kids “unmasking” in the wrong situation is literally a matter of life and death. [/quote]

right? unmasking means my kid falls onto the Metro tracks because he paces and stims and doesn’t watch his surroundings. [/quote]

DP here, with an ES son w/HFA. This comment made me stop and think, because I also have a child who would get hit by a bus if left to his own devices. We spend a lot of time on paying attention to our surroundings and working on remembering all of the steps involved in crossing the street for instance. But I never thought of paying attention in public as "masking". [/quote]

I think it’s a kind of masking. For my son, it’s not only safety, but also safety of others (he might walk into them on a crowded platform). But it’s also addressing odd behavior that can make people uncomfortable and fearful of him in public. He’s small now, but a tall adult man pacing in wide circles on a subway platform will be seen differently. So yeah he has to “mask” that. [/quote]

I have a "man sized" early teen who's emotionally and socially several years behind his age.  He's already been uninvited from get togethers with kids at his social/emotional level because of his size and we definitely have a lot of concern over his physical safety as he gets older though it does help that he is white and attractive looking.  We are working with him on identifying the situations in which he needs to be more locked down in regards to his behavior, but it's scary having a tall, male child who gets loud and paces when he's upset and doesn't really get that it's unsafe.
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