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Reply to "Alarmingly underweight tween"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous]OP. I think it is easy to minimize her situation as you read these anecdotal stories that people post. Your daughter is under the care of a team of specialists at Children's because her situation is a little outside of the norm of just being a skinny kid. I think in this situation you have to be open to every option. At the end of the day what you want is for your daughter to be healthy both physically and mentally. Put aside your initial reactions, keep an open mind and talk to the team about the pros and cons and potential outcomes of the various options you have on the table. Look at what the alternatives are but also at what point the alternatives are insufficient. For example you might make a plan that you won't do a feeding tube now but in 3 months you will assess 4 areas of nutrition and as long as she has made gains in all 4 areas then you will continue with the status quo. If she hasn't made gains, then you will revisit other options.[/quote] This, OP. If you've gotten to the point that you are seeing specialists at Children's, then this goes beyond what most of these posters are writing about in their own experiences. If an RD who is part of the care team has recommended this, you can be sure that it is in consultation with her pediatrician and other medical professionals. Please listen to what they say. I know a tube sounds horrible, but it's not the end of the world and she wouldn't be the first child treated in this situation. It's only temporary. But they are very concerned about her health and long term outcome at this point, or you wouldn't be hearing this.[/quote] +1 OP, I'm not necessarily advocating for the feeding tube, but be careful with responses from here. Well meaning people are going to post thinking they have something to add and can relate, when in fact no one really understands the situation. Since you are resistant to the feeding tube, you might be persuaded by these posts. Please get several opinions from the medical community. I'm so sorry that you and your family are going through this.[/quote]
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