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Reply to "Is ASD a useful label or is it we don’t know we will lump it under an umbrella term?"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote]
With Blood Pressure, there is a clear method of checking and diagnosing.  ASD is a subjective checklist done by others and its easily skewed if one wants it to be.    It also discredits the kids who are moderately to severely impacted with kids mixed in with very minor things or just a bit quirky.  When you say ASD, many just assume very high functioning and quirky when the true ASD (or at least for me) are those far more impacted.[/quote]

Yes, it’s a spectrum and yes, understanding of what ASD is continues to evolve. I don’t see how that “discredits” anyone. My child is level 2 and clearly not just “quirky”. If anything, these sort of debates sound to me like parents of less impacted kids who want to emphasize how much better off their child is than mine. And maybe they are right, but I still find it hurtful. [/quote]

Or, your kid has ASD, theirs is misdiagnosed or so mild the diagnosis really isn't appropriate.  There are clear cases of ASD, but I question so many of the new high functioning where the concerns as the kids get are so mild.  ASD cannot be cured.  Kids can get more functioning with services and parental help but if a child is cured they are misdiagnosed, especially if it was an early diagnosis.[/quote]
Or maybe kids you've never met have a condition you have no training or experience with.[/quote]

Some of us do have professional training and experience in it.  Some of us have it personally too.  You may not, but do not assume it about everyone.  That is how I knew what was going on with my child, which is why I got help early on and mine is thriving.[/quote]
Okay, so you knew enough to diagnose your own child. That still doesn't qualify someone to make judgments about other children you've never met, claiming that their concerns are "mild."  Even if you've met them, you may not know what that kid is dealing with in daily life.  My kid is considered high functioning, so the concerns are "mild" only compared to lower functioning kids, but she is nowhere near NT.   My kid has improved with help, but nobody speaks of a "cure."  The most they talk about is that as an adult she may be able to function well enough to be independent.  That's not a cure, that's just learning enough skills to "pass."  And I don't even know if we will get that. [/quote]

Your child is very different than some of ours so you are not fully understanding the issue.  Its not kids like yours that are the questionable high functioning, its ones like mine who get the diagnosis very young who later show no more signs or the child just has a few mild things and really would be more quirky than ASD.  Its basically ASD or nothing now.  There are people who are saying kids can be cured.  Not here, bu tother places.  High functioning is a range and it is also very subjective.  So, a child like yours gets lumped in with a child like mine, which makes many not really understand ASD as mine is completely functioning now with just very very mild things that we were told by a specialist can be learned to work around, which is happening.  Only one person or two here are diagnosing off the internet but you are forgetting even within high functioning its very subjective for some of us because its very cut and dry with your child.   My child would be one people would claim has been "cured" but in reality it wasn't ASD and something else.[/quote]
It's entirely possible that your kid's case was so mild that the work around were successful enough to allow your kid to "pass" for normal.  This doesn't mean a "cure," he's just learned the workarounds successfully.  This does happen sometimes.[/quote]

My kid is normal and not passing for anything (but I think all kids are normal).  We very clearly had a misdiagnosis but I think it was more for the services/money than anything.  ASD is way to broad, as are other disorders, including language.  (there are also huge issues with language disorder diagnosis, especially at the school levels).[/quote]
Did your kid need services or did he not? Do other kids who need services have disorders or do they not?  Or do they not have disorders but they just need services?  [/quote]

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