Reply to Is ASD a useful label or is it we don’t know we will lump it under an umbrella term?

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Reply to "Is ASD a useful label or is it we don’t know we will lump it under an umbrella term?"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]

Your child is very different than some of ours so you are not fully understanding the issue.  Its not kids like yours that are the questionable high functioning, its ones like mine who get the diagnosis very young who later show no more signs or the child just has a few mild things and really would be more quirky than ASD.  Its basically ASD or nothing now.  There are people who are saying kids can be cured.  Not here, bu tother places.  High functioning is a range and it is also very subjective.  So, a child like yours gets lumped in with a child like mine, which makes many not really understand ASD as mine is completely functioning now with just very very mild things that we were told by a specialist can be learned to work around, which is happening.  Only one person or two here are diagnosing off the internet but you are forgetting even within high functioning its very subjective for some of us because its very cut and dry with your child.   My child would be one people would claim has been "cured" but in reality it wasn't ASD and something else.[/quote]

I’m not the PP you are responding to, but ...

It sounds like your child was misdiagnosed and I understand that is frustrating and disheartening, to say the least. I understand why you reject applying the ASD label to your child. However, that doesn’t mean that the spectrum concept and umbrella label are not useful tools for people who are actually autistic. If you want to rail against the folks who labeled/diagnosed your child, go for it. But don’t presume to question the value of an ASD label or diagnosis for people who feel that it does explain their condition (be they “high functioning” or not).[/quote]

NP. I don't think PP with the child whose child was "cured" is upset. She's providing a real-life example of how the diagnosis may be being overused. I have a good friend with a child who 
"lost" the ASD label and I don't know how he got it in the first place or how he could have had the same diagnosis as another child I know from church who is HFA. The first child is social but quirky and loud, does well in a variety of different type of activities including team sports and in school. There is no question he will go to college, have a job and if he chooses marry and have kids. The second child is verbal and on grade level but extremely rigid. He can participate in structured, quiet activities like scouts with support and does not have friends although he is friendly. His parents have told me they hope he will be able to live independently but they not sure he will be able to drive due to being very literal about things. Those children are as different as night and day to me and I don't understand how you could argue they have the same condition.[/quote]

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