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Kids With Special Needs and Disabilities
Reply to "Is ASD a useful label or is it we don’t know we will lump it under an umbrella term?"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous] Your child is very different than some of ours so you are not fully understanding the issue. Its not kids like yours that are the questionable high functioning, its ones like mine who get the diagnosis very young who later show no more signs or the child just has a few mild things and really would be more quirky than ASD. Its basically ASD or nothing now. There are people who are saying kids can be cured. Not here, bu tother places. High functioning is a range and it is also very subjective. So, a child like yours gets lumped in with a child like mine, which makes many not really understand ASD as mine is completely functioning now with just very very mild things that we were told by a specialist can be learned to work around, which is happening. Only one person or two here are diagnosing off the internet but you are forgetting even within high functioning its very subjective for some of us because its very cut and dry with your child. My child would be one people would claim has been "cured" but in reality it wasn't ASD and something else.[/quote] I’m not the PP you are responding to, but ... It sounds like your child was misdiagnosed and I understand that is frustrating and disheartening, to say the least. I understand why you reject applying the ASD label to your child. However, that doesn’t mean that the spectrum concept and umbrella label are not useful tools for people who are actually autistic. If you want to rail against the folks who labeled/diagnosed your child, go for it. But don’t presume to question the value of an ASD label or diagnosis for people who feel that it does explain their condition (be they “high functioning” or not).[/quote] That is my point exactly. But, when some doctors are not really fully trained, understand the differential diagnosis, it very much discredits those who are autistic. But, using the term even high functioning is so broad that it is not genuine for kids who truly have ASD. Its very subjective in the testing and those with kids who its clear, don't seem to get those of our kids who aren't so cut and dry. They are useful tools for kids who are ASD, but they are not useful tools for borderline kids or kids where doctors just don't know at an early age so they are given the ASD diagnosis as that is the diagnosis that pays for services. The spectrum is way to broad and general and there is such an ability to misuse it - from the schools to get extra teachers to doctors who are trying to help families, like us, easily get services paid for. Even getting rid of Aspergers, which clearly defines many kids, was a huge mistake.[/quote]
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