Reply to Neurologist said she doesn't think son is having seizures, but should get EEG anyway

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Reply to "Neurologist said she doesn't think son is having seizures, but should get EEG anyway"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Also - almost all kids with epilepsy have adhd.[/quote]

Person with epilepsy here. Have never ever heard this.[/quote]

^^^ This. I've had epilepsy since I was a toddler and this is the most asinine thing I've ever heard, and Ive heard a lot of dumb stuff.[/quote]

Given that it's four times higher in the epilepsy population, so around 40%, which is a huge percentage compared to the average population, it's not really the most asinine thing ever, is it? You should get out more.[/quote]

Did you ever stop to think that it's selection bias? Kids under treatment by a neuro are more
Likely to be looked at for other neuro reasons and to undergo neuropsych testing. Or it could be the meds, not all of which have particularly pleasant side effects and small kids are generally not self aware to notice. I had ADHD-like side effects on Topamax, Keppra, Phenobarbital, and specific combinations of medications.

And your article pointed specifically to febrile seizures, which are not technically epilepsy. Those of use with specific syndromes (genetic) and other types of epilepsy don't count in that category.

Finally, I somehow doubt my 41 years with epilepsy and treatment at multiple research facilities (for near complete seizure control), places me in the category of needing to get out more.[/quote]

You are being obsessive about this issue and you are flatly wrong. There are literally thousands of studies on the issue, but these guidelines make it clear. Look, I am glad it is not the case for you, but 4 out of 5 kids with epilpesy have another issue. That is 80%. Do some research and talk to a modern, real time pediatric neuro. I just did at Childrens, Georgetown, and John Hopkins. I do not doubt that you have epilepsy and you are an expert on your epilepsy but you're not neurologist.

https://my.clevelandclinic.org/ccf/media/Files/Neurological-Institute/pediatric-epilepsy-and-adhd-fact-sheet.pdf?la=en

https://consumer.healthday.com/cognitive-health-information-26/epilepsy-news-235/80-percent-of-children-with-epilepsy-have-another-health-problem-713377.html

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