Reply to Feeling so blue...How to live with DD's chronic illness?

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[quote=Anonymous]My son was really sick for a long long time  (he's better now).  It was so depressing and lonely.  Stuck at home, no one understanding, and so much medical equipment it took two of us to get him out of the house.  Our problems were different than yours.

I stopped thinking about all the things we couldn't do and  starting thinking about the things we could do.

We went on vacation.  We rented a house on a lake (Deep Creek in MD).  I went for walks.  We took nurses with us to weddings so we could all go and there was someone to help.

Do not keep your younger child locked in the house.  You are a family unit, but you each have your own lives.  Both children need to support the other child in their lives - whatever they are.  You support your family of course - but you have to live your life too.  She shouldn't miss out because older DD is.

My son was in the hospital for months on end, but we still participated in our other child's school events, sports ect.  They both deserved our time.

You'll figure it out.

Also - what about having someone come to the house for activities?  private lessons in piano, a language or whatever she likes .. .   It something to do!

I am sorry you are going through this.  My son's illness was changed our whole lives.  He is healthier now, and hard to tell what he's been though, but it is still a recovery.  We lost friends and jobs.  It is a long road back.[/quote]

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