Reply to I hate and despise Children's National Medical Center

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[quote=Anonymous]I love CHOP.  We were at Hopkins which I also loved but have since ended up at CHOP because of a rare condition that they have more experience with.  yes the drive is inconvenient but in the long run it saves me time and aggravation - not just from an admin perspective but also a diagnostic one.  It is worth it and sometimes I have to go up weekly....Their CHILD LIFE is phenomenal (so is Kennedy Krieger's but even they look up to CHOP's child life).  And to the really mean poster -- it isn't just about sucking it up. It's great you have something that works for you.  just because you have a sick child doesn't make you the expert. You don't know whether that mom's child has something life threatening or life-limiting, must cope with pain that can't be well controlled, is in remission or not, has family that is around, or not.  Every journey into this is unique and you didn't walk in this mom's shoes just because your kid is also sick.  everyone has their limits.  Often when I am truly stressed there can be something that might seem small to someone else considering the issues we are facing but it can be simething that just makes everything too much.  Conversely, a nurse or admin person doing something kind -- even when things are bleak and they can't fix it can make a huge difference.  I know we have to be strong for our children, but every little thing that makes it easier for the mom to cope, so she can make it easier on the kid who may be truly suffering, really helps.  And no, telling off medical professionals even if it is deserved, can be scary because they can take it out on your kid - they can be a little less gentle with the ng tube or iv or whatever.  people cope in different ways so what works for one parent won't for another.  It's not ok to be mean to a parent of a sick kid and think you have it all figured out.  No one truly does.[/quote]

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