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Kids With Special Needs and Disabilities
Reply to "If you have a nonmobile child, where do you live?"
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[quote=Anonymous][quote=Anonymous]I am the 9:19 poster. When you say that you don't pay any copays with Medicaid in DC, what happens if you go to out of network providers? Would my child be able to continue with her private ST, OT and PT? She is able to walk in a walker but she needs help getting in and out of it. She developed a neurodegenerative central nervous system autoimmune disorder at 3.5 years of age which resulted in a brain injury. Her speech is affected; she is very verbal just very hard to understand. She was already very talkative when she got sick. She is pretty much dependent on an aide for all mobility. She easily qualified in MD for the waiver but we were told the list is very long (8 years) based on her category of medical fragility. We were told she would likely move up a category if she needed oxygen or a feeding tube, etc. Everything is extremely expensive and she seems to be smart. I like that she is in an inclusive environment and in a regular kindergarten class and I'm hoping that we can just deal one year at a time. If we switch to public school, it sounds like Montgomery County is probably better. Do you get at home aides or respite care in DC with Medicaid? [/quote] HSCSN provides home aides AND respite care. If your child has any medical need such as taking a prescription on up to complicated medical equipment they will send a RN. HSCSN had a broad network. I never had a specialist not be in network. Relatively fast to get in. See my blog for info on applying. The Katie Beckett waiver page is NOT specific to any diagnosis. The application process is the same for anyone. Downinthedistrict.eordpress.com[/quote]
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