Reply to Autism and Overdiagnosis: Rampant, in psychologist's opinion

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Reply to "Autism and Overdiagnosis: Rampant, in psychologist's opinion "

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[quote=Anonymous][quote]Your not getting the point of this thread. It is not about and kids like your. We cannot simply go to another doctor. This is the only one our insurance will approve we go to to get speech paid for. Others have tried to get services authorized and we're not successful. It's him or nothing. We have private paid for Evans which are very different but in the end, we are stuck. Not everyone has provider choices.

My child has been treated poorly. You are lucky if your child has not been. Very few people know how bright my child is and we have long given up and supplement at home. Since he's had so many negative experiences he is very reserved outside our home and speech therapy. Just because you do not have the experiences of misdiagnosis and people treating your child poorly, then that does not mean others of us have. Why even comment when the pic does not impact you? Your child is properly diagnosed. It's a non issue for you. If you felt your child was misdiagnosed, would you just agree or would you try to find the right diagnosis and services to make your child successful?
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I've got a kid with a severe language disorder that is often mistaken for autistic.  We've seen the Camarata's.  We battle the school and spend thousands a year on advocates. I understand the rough road you're on and I'm not the only one.  Many of us have similar tales. But, you are reading these posts with a warped prism and you are incredibly defensive.  You are not seeing commonalities in our experiences and, instead, dwelling on the differences and your own struggle.  There are always going to be people who are skeptical of someone's post, don't be one of those people.

Also, I understand the challenges of insurance and limited providers.  We do a lot that's out of network but we also participate in NIH/KKI/JH research studies.  I understand going to a doctor you don't like just to get something covered under insurance.  But don't limit yourself.  Find a research study and get more information.  It's what we do.  It's free and it's world class.[/quote]

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