Reply to The Kids Who Beat Autism: New York Times

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.[/quote]

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.[/quote]

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread. [/quote]

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.[/quote]

There are no answers.  Just interventions, wild educated guesses and pure luck.  She is sad, exhausted and really struggling.  Till you have been there, do not judge. [/quote]

There are no answers NOW. We hope -- I see you are without hope but others still have hope -- that there will be answers, cures and ways to prevent it in the future. That's what the article was about -- that there may be cures.[/quote]

My child happens to be one of the ones breaking through and I posted that so I do not understand your comment.  I am very hopeful my child will be ok but as we go to services daily, I can see the wide variety of kids and how they and their families struggle.  There is no cure - these kids can function better but they will still have their struggles.  Until they find out the individual causes for why, then can never truly cure it.  I believe in misdiagnosis as the reason not cure.  You cure cancer or another medical issue.  Autism is not something your cure.  [/quote]

NP.  My child will probably lose the diagnosis at some point but he was always "mild":  He has ASD/Asperger's, diagnosed at 4 yrs old - his main issue was that he would not engage with other kids.  Always did fine with adults, eye contact is normal, has good emotional regulation for someone his age, does not get in trouble at school, fine with transitions.  He goes to a mainstream school where he does well socially and academically with an IEP.  We only get therapy at school, social skills classes and OT which seems to be enough although I will be asking for more PT which he got when he was in preK and k.

Do I think he'll be "cured"?  Of course not...  I just have to look at DH, his brother and his father who obviously compensates for their "Aspie" tendencies.  DH, his brother and father are all Ivy grads with graduate degrees and careers so "high functioning" by any definition but that's not at all uncommon with Asperger's since the diagnosis did not appear in the DSM-4 until 1994 and was made a part of Autism Spectrum Disorder in the DSM-5 in 2013.

I think it's wonderful that there are kids who have moderate/severe autism but lose their autism diagnosis completely.  Hopefully, science can figure out what separates these kids from others that do not.

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