Reply to how do I get over my own shit to be a good mom to my extremely SN kid?

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Reply to "how do I get over my own shit to be a good mom to my extremely SN kid?"

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[quote=Anonymous]

I do not know what the terminology for the program is in DC, but in the states there is now under the Intellectual Disabilities Medicaid Waiver, which your child certainly seems likely to qualify for in time, the option of a sponsored home placement.  In this approach, individuals, couples of varying ages or even couples with children decide to become the primary caregiver of one with an ID disability.  They are employed by a service organization and must go through training, background checks and keep detailed records on a number of things.  This is a placement option that in time you may want to learn about as a possible option at some point.  There is no shame in placing a child, teen or adult in an appropriate, supportive environment if one is unable to provide the care.  It does not mean that your relationship with your family member would end, only that you would not be the primary caregiver any longer.

Right now you need to focus on yourself and perhaps have a complete physical and mental health screening.  Seek out the respite services that your daughter may qualify for and/or in-home services.  With the time away that you can find, try to find some outlets that will give you relaxation and interest.  And of course work with DH on your relationship because a young child with multiple, on-going needs is hard on both parents.  If you can be connected to parents of children a couple of years older with similar needs, you may find your best resources on information from local services, to ideas for handling the daily routine to just having others who really can relate to what you are feeling.  There is no wrong answer in seeking assistance as you are helping your daughter by caring for yourself.[/quote]

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