Reply to how do I get over my own shit to be a good mom to my extremely SN kid?

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Reply to "how do I get over my own shit to be a good mom to my extremely SN kid?"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]I am praying for your family. You are stronger than I would have been --[b]I would have been too afraid and selfish to bring her home. [/b]Therapy and respite care are good suggestions.[/quote]

Just wondering what you think the options were?  Mythical foundling home?  Mythical "institution" that your insurance would have paid for hahahaha? Abandonment and arrest for you?

Why, in your wildest dreams, do you think this was a supportive comment?[/quote]

Not pp, but is this true? When I was a kid I knew of severely disabled kids who went to other homes to live similar to nursing homes because their parents couldn't care for them. These don't exist anymore? What happens if you have a severely disabled child? I'm not trying to be obtuse, but I've wondered this. [/quote]

I've wondered this too....can anybody answer?[/quote]

I believe children with disabilities can get long term care in an institutional or group home setting through Medicaid. But I don't know if the child can qualify for that without regard to family income. I know children with disabilities can qualify for the Katie Beckett waiver (which in DC means you get HSCSN, Health Care for Children with Special Needs) without regard to family income. But I think that's aimed at providing services to children in non-institutional settings.[/quote]

The era in which the state institutionalized anyone upon request -- the elderly, the infirm, the disabled, the mentally ill, -- is long gone.  You are the caregiver for your parents, your children, your mentally ill spouse, your alcoholic nephew.  You cannot leave your child at the hospital -- well you can, but be prepared to (1) go to jail and (2) pay for that child's care in a foster home or nursing home if your family has any resources whatsoever.  Most families do not qualify for Medicaid, and even if they do, there are no group homes available.   There are precious few group homes, and waiting lists are extraordinary.  They are not for infants and young children.

You might google Willowbrook State School if you are interested in finding out why the era of institutionalizing disabled children came to an end in the 1970's.  Look at the pictures.  You may never sleep again.[/quote]

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