Reply to CDC autism rates 1 in 68 kids..... 1 in 42 boys!

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Reply to "CDC autism rates 1 in 68 kids..... 1 in 42 boys!"

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[quote=Anonymous][quote=Anonymous]I come to this forum for comfort after hearing "there's nothing we can do" or trying to comfort a child who wants nothing to do with you because he can't connect.  Not to read statements from people who question my child's very existence.  Let's get beyond that and let's take ASD seriously.  My child is high functioning.  What does this mean?  It means he is intelligent enough to know he is different and to understand (sometimes) when he is isolated from peers.  It means people expect him to act his age- but he can't.  It means he "looks fine" but still may never be able to live outside an assisted living facility.  it means he has been hospitalized twice already for issues that even the doctor can't explain and he is only 8.  It means that unless things change, even with all of these "services" he will miss out on everyday childhood things, like camp, and best friends and being able to go somewhere, anywhere without a chaperone.  And it means that strangers feel entitled to tell parents, in front of the child, how they should parent.  Always offering advice with no idea what it is like to raise a SN child.  And don't get me started on dealing with schools, special diplomas and such.

Sorry to vent.  But this caught me after two nights of no sleep because DS can't sleep- even with melatonin. Because ASD kids tend to worry about everything and have trouble shutting down.  And did I mention the sensory issues...  DS accidentally cutting himself while doing origami but not being able to feel it?

Yes, services are great.  It allows DS to go to school and to remain at home instead of in inpatient care.  It keeps me from crying every night because I want to make his world better like any other parent, but the deck seems stacked.  Services allow us to have periodic moments of "normalcy" like having the entire family go out instead of just going out two at a time.   If you don't live it, you haven't a clue.  Is this the life people are scamming for?[/quote]

+1[/quote]

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