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[quote=Anonymous]Thanks for the updates, OP.  I know what a shock this can be and how bleak reading the evaluations can make you feel.  I'll echo something a PP said about, after a while, you'll realize this diagnosis is life altering but not life ending.  Regardless of the diagnosis, what you're doing right now is what your DS needs - that's what's important, not his diagnosis.

If you're interested in a second opinion, I highly recommend the NIH studies.  There are a number of them involving ASD [i]and[/i] other developmental delays.  You can search the studies here http://clinicalstudies.info.nih.gov/cgi/wais/bold032001.pl?A_06-M-0065.html@autism@@@@ .  I pulled this one http://clinicalstudies.info.nih.gov/cgi/wais/bold032001.pl?A_06-M-0065.html@autism@@@@ because it looks similar to the one we participated in.  We started with DS1 when he was 5 because we knew something was going on, couldn't figure out what, were waitlisted for a dev ped and were told by Child Find (incorrectly) that because he was K eligible age, we had to wait until he started school before getting an evaluation through them.  They did extensive testing - which was helpful when we were going the IEP route but his delays weren't significant enough for him to continue in the study,

DS2 was a different story.  He was @20 months when he joined.  He had most of the symptoms you described and was already enrolled in EI PT (gross motor delay greater than 25%) and waitlisted for speech.  We had concerns, of course, about ASD but he didn't seem to exactly fit the profile.  The research team was awesome.  DS did NOT like being there and we had to complete the testing over 2 days.  At the debrief, they definitively rules out ASD.  He was later diagnosed with apraxia/MERLD/ADHD (inattentive).  Now, some people will say those diagnoses are 'soft landings' for ASD and perhaps in some cases they are but not in our case.  As he's gotten older, it's become more apparent that he is not on the ASD spectrum.    It would have been okay if he had, we wouldn't have done anything differently but it's nice having information.  Hugs.[/quote]

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