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[quote=Anonymous][quote=Anonymous]OP, I can't imagine how hard that must have been to hear.  Hugs to you.  It sounds like you have regrets about not calling sooner and since I work in Early Intervention I can tell you that you are very much on the early side in terms of getting started with services.  Many of the kids I see haven't been started until much later - 24, 36 and even 48 months!  You are doing all the right things.  Early intervention can really make all the difference and it already sounds like there has been noticeable progress made, which is a really great sign.  I also agree with a PP that you should get a second opinion however I would wait until DC is a little bit older and has had more time in intervention services-so that you can get more information about strengths and needs.  Children's or Johns Hopkins can do a full eval (and they take insurance) or EI can have a psychological done.  If you put his name on the wait list now at Children's or Hopkins it will be a few months and he'll be older by that time anyways.  In the meantime talk to your doctor about having bloodwork/genetic testing done on your son to rule out any medical diagnosis.  [/quote]

+1 I used to work in EI as well.  Most children I've seen coming in with this dx were 2 1/2 or older.  It is overwhelming, but there are a lot of helpful support groups and resources.  Please ask your therapists or Service Coordinators for some of those.  There are usually Social Workers who work in EI, not to report back to CPS (a lot of my families worried about that!) but who are there for this exact reason, to help the families deal with the psychologial impacts of having a child who is different than the one they expected.  Please reach out to them and let them know how worried you are -- it's part of their job to help you get your head wrapped around this so you can be as present for the little one as you can.  As someone who has been on both sides of this, it really helped me to meet families with older kids, to see how they were doing okay and how this dx wasn't life-ending, just life-altering.    [/quote]

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