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[quote=Anonymous][quote=Anonymous]To OP - I read your opening comments but don't have time to read everything inbetween.  I just want to share some info with you that might be helpful.  First of all, thanks for mentioning the encopresis - I learn something new on dcurbanmoms every day - my DC has it although the pediatric gastro. did not put a name to it.  Thank you.

Here's my message.  Our pediatrician completely missed the fact that our DC had Aspergers/anxiety/ADHD.  From birth DC had GERD, an unusually red behind, gas, pain in the gut.  I kept complaining.  Pediatrician blew me off.  Testing (full NT) 4 times showed high I.Q. and possible executive functioning problems. Then exec. functioning problems two standard deviations off norm.  Then ADHD.  It was only on the fifth round of testing (when I insisted on blind testing) that we got the Aspergers diagnosis - which is absolutely correct.

Next I start reading on Aspergers and find the link to the gastro issues.  I ask ped. for referrals and get hooked up with someone who does everything BUT a simple x-ray.  I research it on my own and called Children's Hospital in Boston and ask the no. 1 research on the link between aspergers and gas/leakage/abdominal issues for a local pediatric gastro.  DH and I take DC in to see him.  He examines DC and says "well, I'm sending DC downstairs for an x-ray but I predict that DC is full of fecalomas (hardened, old balls of stool); I can feel that her rectum is already extended".  Downstairs we go.  Get the x-rays.  Even I, a non-doctor, can see the fecalomas in the x-ray.  We do a full clean-out.  DC is much better.  Ped. gastro. says good but this is not the end - DC's colon is distended and will never properly return to normal size because this problem went unchecked for more than a decade.  He was right .  DC is full of fecalomas again so another clean-out is due plus daily miralax treatments.

So what I'm trying to say is that we've been there.  Our DC has soiled himself.  WE found out the answer was Aspergers and untreated fecalomas.  DC has been on zoloft and sertralene for five years.  DC also complains about every little ache and pain.  DC is extremely bright.  We had an IEP which helped tremendously but it's still a struggle.

Does your child sit on the toilet for a long time?  Ours did and we didn't understand why.  We also didn't understand why DC couldn't tell us whether or not it was diarrhea or constipation because it was both.

Let me know if you want me to post the name of the ped. gastroenterologist.

Good luck.  I am praying for you.[/quote]

Could you please give the name of your gastro?  Thank you![/quote]

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