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[quote=Anonymous]His challenges are variable. The belief is that he has an underlying autoimmune disease and the resulting encephalopathy appears to relapse and remit. He's in fifth grade now and having a lot of problems, but he was at level through most of fourth grade. He missed much of the last three months of the school year because of a dramatic uptick in seizures. He reads at or near grade level sometimes and can do fifth grade math on good days.

We're also fighting Electrical Status Epilepticus during Slow Sleep (ESES), which is a form of/component of severe epilepsy that can result in significant neuropsychological regression. Sometimes referred to as Penelope Syndrome, from the myth of Penelope, the wife of Odysseus—what is weaved during the day will be unraveled during the night.

So it is believed to impact the consolidation of memory, but they don't know why.

His last 24 hour EEG was negative for ESES, but the one before was positive.

We are also in the process of weaning him off a couple of antiepileptic medications both of which cause fatigue, dizziness, headache, drowsiness, anxiety, and abdominal pain. All antiepileptic drugs negatively impact cognition, even the ones that are purported not to.

So the short answer is we don't know from day to day, week to week, or month to month what to expect.

Thanks again for your input
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