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Reply to "what is the worst thing someone has said to you, on DCUM?"
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[quote=Anonymous][quote=Anonymous]One of my kids was diagnosed with a life limiting condition. They would eventually die about 14 months later so this was not a mild diagnosis. He left the hospital dependent on a ventilator. As we were reeling and trying to figure out how to balance his new and enormous needs with those of his siblings, I posted here. People told me I was selfish for not putting my “normal” kids first 100% of the time, that he probably was so disabled he didn’t know I existed (note: his cognitive capacities were not impacted by his medical condition, but even if they had been, kids with intellectual and developmental disabilities know their parents exist), and that I was obviously exaggerating about his needs. [/quote] I am so very sorry on the death of your beloved child. There is no excuse for what others responded to your post. But unfortunately it is typical of some of the posters on here. I honestly could never speak this way, even if I were 200% anonymous. 💔[/quote]
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