Reply to Neurospych Testing Recs- Who did you use and did you love them?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]How about Kennedy Krieger?[/quote]

Haven't used her but Dr. Alison Mostow at KKI was recommended to us.[/quote]

She is a clinical psychologist, not Neurodevelopmental one. We had a 3 hr evaluation with her for a child of 5 and she explained the difference between her eval and full neuropsych.  I found the results of testing informative and she was very attentive, but the report disappointed me a bit. It was basically a  very careful record of everything we said at parents' intake, some stuff from other specialist reports we submitted and then test results. In terms of recommendations she endorsed everything we were already doing (truth be told, we are doing a lot), so I didn't come away with a sense of fine-tuned direction or understanding what we should do more of or less of.

An important note for those who need to lean on heavily on neuropsych results in IEP process - the KKI recommendations were phrased as "may benefit from", we asked to revise to a more persuasive language and got "xyz is recommended". This may depend on individual child's profile, but nothing in the report said "required" which is strange to me. My child is broadly at age expectation academically for K, but has AuDHD, dev. delay, general emotional immaturity and elevated anxiety scores. So with this report if we were doing K at public school, getting any service minutes would not be a given with this type of report.   We did have a good parent feedback session and discussed all questions that we raised.

I have no issues with test results and am glad I was able to get my child tested by a reputable specialist at a place that takes our insurance, but I felt like for the next neuropsych whenever it happens to be, I will go with a different practice, privately. Also, KKI doesn't do 2 versions of report like some private practices do. [/quote]

I think you are expecting to much. Evaluations and “neuropsychs” give you objective results based on normed instruments. Specific details and projections about what your particular kid needs are not really able to be discerned except on a general level for what the practitioner recommends for other kids with similar profiles. You need to work with therapists and schools to figure out what is really going to work for your child in practice. [/quote]

I've been struggling with this conceptually over the years. Coordination of care. SLP can assess language, OT - her domain, ABA - behaviors. Who is supposed to look at the child wholistically and pin point issues that are not squarely in one of these? If there is limited time or resources, who can tell you how to prioritize or sequence interventions? Who is supposed to tell the family what tier 1 problems/goals are and which ones are tier 2 or 3?  I was told that this is dev. ped. OK, we have a very nice one at Childrens but we see her every 8 months or so for 1 hr. Is she supposed to read reams of reports from other therapists to fully wrap her head around my child's profile and give this guidance to the family? It's not happening. She answers questions, confirms that we're generally on track, can recommend providers if we can't find a good one in a specific area, but doesn't tell me what to do in the next 12-18-24 months to support progress. I love all of our providers, but they are in private practice, nobody is going to say you can drop me to once in 2 weeks and ramp up hours with provider X in another domain.  I am an educated professional who is committed to help my child, but I am a lay person in special needs domain, how am I supposed to figure it out? Neuropsych costs several thousand dollars and I "expect too much" because they are only accountable for reporting standartized test results for this money? Come on.[/quote]

I mean of all those professionals, the neuropsych is the LEAST likely to give you some kind of prescription for what to do. They are testing your child’s functioning on standardized instruments, that’s it. [b]They don’t know your kid, his family resources, the local school.[/b] And yes I fully agree that paying thousands for that is a waste which is why I advocate for going through insurance or the school. [/quote]
Our evaluator got to know my kid pretty well through parent interviews, interview with her OT that sees her every week, school observation, student and teacher questionnaires and testing.[/quote]

that’s still an extremely narrow and static perspective to make projections or detailed recommendations about services. [/quote]

It worked great for us. I can only speak to our experience. Evaluator really "got" our child and recommendations are super helpful.

It's true, our particular evaluator did not have a crystal ball. So we will likely be seeking another eval in 2-3 years. We hope to get it from the same person.[/quote]

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