Reply to Neurospych Testing Recs- Who did you use and did you love them?

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Reply to "Neurospych Testing Recs- Who did you use and did you love them?"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Our school did a good one. Otherwise, anyone who takes your insurance. They are standardized, normed tests. [/quote]

I strongly disagree, unless you get a rec for someone good who takes your insurance. This is the kind of thing where you want to feel like you've left no stone unturned, and fund it accordingly, even if it means being in some debt. This diagnosis will determine what kind of accommodations your child gets for the next several years as well as what medications, if any, a doctor will recommend. I would go with someone random to take out my child's tonsils, but not for this.

We worked with Dr. Elliott Blumenstein in Silver Spring. He was a total delight--easy to be with, open to questions, my son loved him, and he really opened our eyes. I can't say enough good things about him. [/quote]

Most kids don’t need to leave “no stone unturned” because the issues just are not that complex. FWIW we got very similar results between Childrens, KKI and the school - these are normed instruments after all. And the diagnosis does NOT determine the accommodations! That’s totally backwards. Most people don’t have reams of $$ and in most cases are better served to save their money for therapies/tutoring. [b]With the exception perhaps of learning disorders, developmental conditions severe enough to need testing are obvious and do not need to be “teased out.” If they are that “subtle” then the therapy approach is probably going to be pretty general. [/b]

tl;dr - developmental issues are not  hidden and if they are, they are not actually developmental issues. [/quote]

I find this take a little bizarre. What is a "general therapy approach"? That sounds like a money pit. Do you think kids with lower support needs don't deserve supports specific to their challenges? Or do you just think our kids are over diagnosed? Tell that to the many people whose teenage girls get a late diagnosis of autism when they are already experiencing severe mental health challenges due to the lack of supports that boys with similar issues   are able to get much earlier.

It matters if social challenges are caused by anxiety or if the root is autism, and it's not that easy to tell especially since anxiety typically comes along with autism.  We as parents absolutely needed that teased out in order to continue our child's supports after she had showed significant improvement.[/quote]

I actually don't think there is any perceptible difference between social challenges in young children caused by anxiety vs autism.

I also don't think girls diagnosed in adolescence with autism have a neurodevelopmental condition that has much in common with that seen in three year old boys diagnosed with autism. I think there are a lot of different disabilities we have chosen to call autism, for some reason.

Almost all the little boys I know who were diagnosed with autism in toddlerhood and preschool have significant mental health issues as teens, so the supports they got throughout childhood didn't seem to prevent that aspect of autism. Unfortunately.

I am not saying everyone doesn't deserve support.[/quote]

Experts in the field would strongly disagree with you on most of what you said. A kid with anxiety but not autism will perform differently on the ADOS than a kid with autism even if the kid with autism doesn't conform with your stereotypes about autistic kids. This is not an unstudied topic. You are not an authority on this so stop pontificating on the diagnoses of kids you've never met.[/quote]

DP. Right so this whole thing of needing to shell out $7k to get an expert to “tease out” autism v anxiety is uneccesary. You can to to KKI or Childrens and have someone with the exact same training administer the exadt same normed test; but covered by insurance. Then you can take your $7k and spend it on something like an enriching SN camp or tutors instead. [/quote]

1. Some people have insurance that will reimburse out of network costs at a certain percentage. We did and it was either wait indefinitely for a provider that takes insurance or get our kid tested within a few months and importantly, before kindergarten. Every situation is different.
2. You can rail online all you want about how stupid you think the notion of 'teasing out" autism is to you.  I personally am glad I followed the advice of a wonderful therapist to seek an evaluator with expertise in autism in girls and my child is benefiting. It's weird as hell that my child getting the support she needs is so hilarious to you.
3. You seem to think administering and interpreting the tests is really easy. Sounds like you should break into the field. You could make a fortune![/quote]

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