Reply to So, Lyme disease treatment is a cottage industry?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]PP here with the 10 year delay.  I’m doing the horowitz protocol.  He is training doctors so it will be easier to access.  The doctor here I recommended does some of the core antibiotics for a much longer course.  The protocol I am on is a much larger combo of antibiotics/antimalarials but for shorter course of time.  Take home points of this mess I would say are:
1. If you’re sick you need to check for more than just Lyme. You’re likely co-infected with many strains or multiple organisms (babesia, bartonella, etc).
2. If you’re a woman take a close look at your kids if you’re positive.  It can be spread congenitally and this is vastly under appreciated.  Kids have mainly behavioral /neurologic systems affected before the physical.
3. Functional medicine doctors can most likely get you a diagnosis as they use better tests ( igenex, t lab, some do vibrant but most Lyme docs don’t prefer this one).  Molecular studies are the way to go as you just won’t have a reliably working immune system if you’ve had this for a while.  
4. You’ll likely try one or more doctors depending on who you stumble upon and what works for you.  There is no set practice yet as persistent Lyme+ was completely ignored by the cdc for decades.  Lots of doctors still doing things that don’t work ( I’m looking at you doxycycline alone). ILADS at least has the group but even within that there is a lot of variability in treatments offered.  What works for some doesn’t for others for a variety of reasons.
5. This can affect every single system in your body.  Every. Single. One.  It is helpful to have the diagnosis as a good lyme doctor will at least be aware of this and many symptoms will go away with treatment.  This versus having 15 doctors for your 15 malfunctioning parts of your body… all of whom don’t talk to each other and most likely don’t understand lyme+.

[/quote]

“congential lyme” isn’t a thing, crazy lady

https://www.who.int/standards/classifications/frequently-asked-questions/congenital-lyme-disease[/quote]

Listen, people like PP are all in. You will never convince her that chronic Lyme is not a thing. She and her doctors know something the entire rest of the medical community doesn’t. They’re like closet geniuses or something. And totally misunderstood. Don’t waste your breath. [/quote]

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