Reply to I suspect that I have ankylosing spondylitis. My GP is dismissing me.

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Reply to "I suspect that I have ankylosing spondylitis. My GP is dismissing me. "

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[quote=Anonymous]OP, it's already been mentioned here, but Aleve has been incredibly helpful with my pain, even better than Rx NSAIDs. It's not ideal, given the GI impact, but might be good to try to tamp down the inflammation. When my pain flares, I take a double dose morning and evening for several days and it really works. Does your pain respond to any meds?

As for a diagnosis, increased inflammatory markers, CRP and ESR, will play into a diagnosis, as will symptoms. If you are hobbling around in pain for more than 30-60 minutes everyone morning that is a sign. As is pain at the SI, hips or lower back that gets worse with rest, hence the morning pain and stiffness. A peripheral form of the disease also impacts outlying joints.  I myself have the axial form but my Achilles were hugely damaged due to years of stiff leg muscles.

Do not discount diet also. Autoimmune diseases begin in the gut. Might be helpful to do an elimination diet and keep a food diary. I was so frustrated, I did a three day fast and all my pain went away. I slowly added food back in to find the worst triggers. It's not full proof, but I've been able to avoid the immunosuppressants so far. And it's something you can test while you wait for appointments. Sauna and controlling stress really helps too. [/quote]

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