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Reply to "Parent w/ Parkinsons, next steps..."
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[quote=Anonymous][quote=Anonymous]OP, my heart goes out to you. I am so sorry for your loss. I am glad the final hours were peaceful and it sounds like that's what he wanted as well. I Hope your mom is doing okay and you can support her now.... My father has Parkinsons and his wife (my stepmom) is in denial (she won't let him even use a cane, says its 'all in his head,' and he needs to 'work on his balance'--since his last fall/concussion I am hoping she has relented but I dont know.). I've advocated for more in home care (there's plenty of money) and some things that would help, like curbless showers, seats in showers, cleaning the clutter so there are not boxes in the hallways, etc, but it all falls on deaf ears. It's so hard. at a certain point, all I can do is be with him when he needs me to be there, and try and advocate for a calm, peaceful end when its time. [/quote] Op here-I'm sorry that your dad's wife is putting him at risk with her denial of the situation. My mom had some denial too (I've posted here over the years about that) but it was more along the lines of denial of where he was in the journey. She never blamed him, I'm sorry your dad is enduring that. Does she have any health issues like cognitive issues? Is your dad still cognizant enough to at least give hippa permission so you could speak to his dr? I would try to give his primary dr a heads up that he's not able to be safe at home at this time. If he's already fallen to the point of concussion, there will be more falls and at some point, hospital admission. It sounds like its at the point where you (and siblings if you have them) may have to sort of stage an intervention so that your dad can at least get needed mobility devices at home (he probably needs a rollator at this point), and the house made navigatiable (removal of clutter/boxes, throw rugs, ect) and some basic bathroom safety (grab bars and a shower seat). This is a tough situation, pp, I'm sorry.[/quote]
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