Reply to Neurologist recommending anti-seizure meds with no actual seizure yet?

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Reply to "Neurologist recommending anti-seizure meds with no actual seizure yet?"

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[quote=Anonymous][quote=Anonymous]My kid has ESES. He did brain MRI scan, no damage and he has not had one seizure. He has nonstop brain activities all night long, and he has done 1 hour EEG & 12 hours EEG showing same abormal nonstop activities. He has diagnosis of anxiety, autism level 1 and adhd, unmedicated for anything yet. I always wonder if those are ESES triggered behavior. He had neuropsych evaluation showing 130 IQ with lack of attention. He does well in public school mainstream academically, does okay in rec. sports (poor in sports), and he has a few casual random friends.

We got ESES diagnosis, and got 2nd opinion confirming ESES. Because there have been "considered not much impact or delay or regression" on him, we have been holding off on trying medication for few years. We fpund out he had abnormal EEG when he was 2/3,  covid hit, and he is 7 now still doing okay. We consider to put him on medication. Some pp mentions keppra, what is the side effects? We were recommended low dose steroid over 2-3 months including weaning time to kill the ESES in one strike (from children hospital). What do you think of steroid? We were told that we should expect to see great improvement or much differences if he is trying medication in his case. Any suggestion?[/quote]

OP here - Sounds similar to our story, although we haven't gotten a formal diagnosis of an epileptic condition, just focal seizures.

Given the people who have commented here, and others I have seen elsewhere, it sounds like it's not a matter of "if" someone with abnormal brain activity will have a seizure, it's "when."

That is why we decided to go with the medicine because I wouldn't ever forgive myself about something happening before beginning medicine, especially under the auspices that the medicine could mitigate further activity.[/quote]

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