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Reply to "Neurologist recommending anti-seizure meds with no actual seizure yet?"
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[quote=Anonymous][quote=Anonymous]Feeling a bit lost.. anyone here with kids who have epilepsy (or you yourself)? Recently got off the phone with my kid's neurologist. Kiddo had a 72 hour EEG that is showing increased electrical activity. No actual seizure has occurred per the EEG, but there is increased activity, especially during nighttime/sleep. Kiddo has talked about seeing shapes, different colors, glittery objects, and feeling dizzy. [b]Neurologist is recommending anti-seizure medication because they're concerned that if we leave it to watchful waiting, that more areas of the brain could develop abnormal activity which could lead to a more involved, basically scary seizure, especially if it occurs at night and no one is awake to respond.[/b] It all feels like things are happening so fast. We're a family who doesn't immediately jump to medications (even for myself, I hate taking Tylenol as frequently as I do). Should we seek a second opinion? Or go with starting medication? We have zero familiarity with epilepsy so we're feeling overwhelmed.[/quote] OP, this is called "kindling." Abnormal pathways being excited (even if not tipping over to a full seizure) makes them more prone to the same behavior in the future. It's kind of like the electrical version of wearing ruts deeper in a mushy rod every time you fall into the same grooves The most patient friendly cite I can find is Wikipedia: https://en.wikipedia.org/wiki/Kindling_model_of_epilepsy[/quote]
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