Reply to How likely is it a six-year-old with a developmental delay to catch up?

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Reply to "How likely is it a six-year-old with a developmental delay to catch up?"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]My DS just turned 5 and we were told that if he hadn’t caught up by 5, that the diagnosis of global developmental delay would go away and  be replaced by intellectual disability. No one says it explicitly but what I have discerned is that kids don’t catch up if they haven’t caught up by 5, and that we shouldn’t expect DS to.

One thing that I have found is it feels like so much if the infrastructure for kids with SN is geared towards ASD. I think kids with ID are more rare and it sometimes feels to me like the SN infrastructure caters so much to the ASD kids that the ID kids are sort of ignored.

I’m actually an attorney and my DS wasn’t getting any services until one of his teachers basically privately pushed me to push much harder  and gave me language and almost a road map to use. That conversation combined with my own research allowed me to go into the IEP meetings to FINALLY get services. It makes me ragey that my DS’ education literally hinges on my ability to figure out some set of magic words and then say them verbally and in writing. Because I believe everyone agreed that he needed more help but he wasn’t getting it until I essentially said the magic words. Now he gets a lot more support. It makes me angry. If I needed help from the teacher to know what to say and I’m an attorney who works in education law no less, then how do “normal” parents stand a chance????

Tell the parents very specifically what to do if you can.[/quote]

“ My DS just turned 5 and we were told that if he hadn’t caught up by 5, that the diagnosis of global developmental delay would go away and  be replaced by intellectual disability. No one says it explicitly but what I have discerned is that kids don’t catch up if they haven’t caught up by 5, and that we shouldn’t expect DS to.”

This is such false, inaccurate info. Whoever told you this is wrong, or you misunderstood. Please do not post this as if it is true or fact. THIS IS NOT ACCURATE INFO. Sorry you had such a terrible experience. This is not what I see happening in the schools. It is wrong.[/quote]

I’m the PP who wrote this. This is what we’ve been told by multiple medical providers-a psychologist who did a neuropsych on our kid, a neurologist, a developmental pediatrician, and our regular pediatrician. It has zero to do with the school. Im just sharing what our medical providers at CHOP have told us.[/quote]

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