Reply to Please help, what is this condition or disorder?

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Reply to "Please help, what is this condition or disorder?"

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[quote=Anonymous]I didn't read this whole thread, but I wanted to respond to OP's original post.

I have an older child who behaved similarly to OP's child when he was younger. My child never had a diagnosis, despite repeated visits to many specialists, tests, etc. Every expert I took my child to told me I needed their particular treatment, from listening (can't remember what it's called) to this thing where you do some stuff on a computer while wearing headphones (can't remember what that's called) to PT, OT, speech therapy, social therapy, etc. etc. I ended up listening to my gut feelings, and using the therapies that made the most sense to me based on MY knowledge of MY child, not that of some "expert" who saw my child for a total of 30 minutes.

Despite having no diagnosis, I went with the biomedical approach that's used most often with ASD kids using diet, supplements, homeopathy and chelation as well as social, speech, OT, PT.

Fast forward a decade, and DS is pretty close to typical for kids his age. Some people who knew him back then claim he "grew out of it" but I think it's a combination of therapies that made him get better.

OP, I will say that I gave up my career to take care of my child and that I'd do it again, but it's a huge burden and a full time job that carries an enormous cost. If you don't have time to deal with such a child (and who does?), just do the best you can. I avoided medication because I feared the long term effects of it (unknown, despite MDs protestations that all these medications are "safe" for children), but I do understand parents who medicate their children because they need their child to function NOW. But I'd get off the meds as quickly as you can, should you need to use that approach.

You have my sympathies, OP. Diagnoses imply a "cure" or treatment, but there is no such simple answer, nor are diagnoses clear or straightforward. Every child is different, and therefore the treatment has to be tailored specifically to that child.

OP, please ignore the ignorant posters who criticize your parenting skills. I was given so many dirty looks by parents for my child's behavior that I finally learned to tell myself that I am doing the very best I can, and that my child's behavior is not my fault. I have three other children who behave "normally", so I would look at them and realize that all those ignorant parents' dirty looks reflect their lack of empathy, and that my "normal" children reflect my true parenting skills. It is so, so difficult to have a child with problems, OP. Hang in there. My child is really delightful now, not perfect, but a pleasure to be around, reasonable and social, and only rude sometimes. I never get dirty looks, and often receive compliments from people who tell me what a nice child he is. It's been a long road, and it's not over yet, but I did get through those very bad years, and you, OP, are right in the midst of them. Good luck to you. [/quote]

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