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[quote=Anonymous]OP my almost identical sounding child at that age was just like this on vacations and is still terrible. Anxiety and anticipation and all the emotions and newness make him so much worse on holiday. It is awful. I so feel for you. He’s so excited and happy but just a holy terror. Nobody else can enjoy even a second. You do need to reasses meds. He may need a sedating type of AED. Some are very activating. My son was and is wildly impulsive and hyperactive and these things are just so exacerbated by anxiety. Depending on where the seizure activity is, you may want to consider CBD or if adding anxiety medicine is helpful. We also did ABA with our non autistic epileptic child.

In terms of short term survival, drop expectations to the floor. Let those go. Have him dress himself for the beach, spray him with sunscreen and rent a beach umbrella. Accept you can’t come in and out of the ocean for your basic needs and have your husband tag you in and out. BTDT. Ugh. After like three or four hours, together carry him out do the ocean and get him to the room and bath, then screens. Then take turns sitting with him while he watches screens and the other one walks about is with the other kid etc.

I’m so sorry. I know it’s exhausting. Every trip we go on leads to me scheduling consults, getting more therapies, etc. Trips are HARD for hard kids. [/quote]

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