Reply to Do you have a friend who makes up vague health reasons to cancel your plans at the last minute?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]I have chronic pain issues (daily chronic migraine) and it is so hard to make and keep plans. No one gets it, though I try really hard. When I do cancel plans, I don't give very detailed reasons because most people don't understand what chronic migraine is. It's not just a headache. It's nausea, vertigo, dizziness, body aches, and severe pain. Sometimes the vertigo is so bad that I cannot walk. The attacks come suddenly and the side effects remain for a while.

My point is that maybe you should BELIEVE her. Ask her if she needs something. Chronic illness and/or chronic pain is so tough to manage and only exacerbated by people who think that you're a liar.

So I don't know what health issues your friend has but support is always a good idea. [/quote]

This, and people don't understand how bad it can get.  Or, they think you can just change your diet, etc. and all is well.  I've been on all the new medications and not one has helped and the side effects have been just as bad as the migraines.  I stopped making plans except last minute (minus covid and its not worth the risk to add on covid to my current health issues).  [/quote]

Hugs to you, PP. I've also been through the rounds of dozens of SSRIs, beta blockers, calcium channel blockers, Botox, ketamine, nerve blocks, etc. all with terrible side effects and not much relief. I'm starting new CGRP but terrified of more side effects. It's so exhausting. I'm tired of it.

And reading posts like OP's only makes it harder to try to get out and make plans. Because what if inevitably I'm not feeling well. Neurological disorders really suck. [/quote]

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