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[quote=Anonymous]
My parents went between Cape Cod and Naples Fl for about 27 years and when they went to establish residency in Florida, my dad made sure they had a lawyer/firm with rules for legal documents in both states.  At about age 92, they decided to return 'home" and reestablsihed residency in MA, which had become more favorable to retirees.  So legal documents are something you need to keep on top of.

We, too, have a young adult daughter with a disability who resides with us with a cognitive disability.  I think you probably realize that "if" one is able to get a Medicaid Waiver that it is not portable between states so you need to consider this in retirement planning.  I can remember looking at the Arc of Florida website a couple of years ago and seeing a large notice "not to come to Florida" because the wait for Medicaid waivers was so long.    Also, with most state budgets facing cuts of social services, it is time to be really realistic about "residential options" with no rose covered glasses about what you hope will happen.  Believe me I know this is not easy, but even death of a spouse does not necessarily get one to the top of a local DD Waiver Waiting list because so many have such intense needs.

General steps to consider:
a- Be sure your adult child has a Case Manager in the state where you do have residency so the CM can have contact and get to know her and your family situation.  For your benefit setting up a relationship is an important step for those who will step in an emergency.  If you can't have active case management, then be sure to understand what "episodic case management" is.

b- Be sure to have checked over any plans for Guardianship, Power of Attorney, Health Care Proxy for your daughter in terms of setting up secondary individuals if the plan is to transfer it to even a sibling in another state as there are rules.

c- [b]I have friends who have bought a condo as a second home now and eventual a place to live as needs in crease near their daughter.  They are investigating whether or not they can get their son on the Developmental Disability Waiting list in that sate based on owning a home there, but not establishing primary residency.   Currently, he does have a DD Waiver in the state where they live.   I am very interested in learning about this as it seems rater "iffy" to me or any one with funds could buy a property and sort of have one on two DD Waiver Waiting lists" at the same time.[/b]

d- In researching a change of residency, you want to learn about the services in the local area where you will be living and to get the statistics on the DD Waiver Waiting list there as slots are chosen on the local level  as funding increases come in a state not out of a centralized list.  It may be that certain areas in a state are a better place to get a DD Waiver than others.  However, the drawback can be that they are in a more rural area.

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