Reply to MERLD / receptive expressive language disorder and friendships

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]P.p of 4yo, can I have a link to a merld group? Looking for support.[/quote]

Natural Late Talkers on Facebook. It's a closed group and you have to ask to join, and it might take a day or two to get access, but it's a good, supportive forum and they have rules to keep things from veering off into special diets, supplements, and whatnot. [/quote]

Yes, this group is terrific.

Such a relief after the DCUM, which is openly hostile to MERLD, as we see in every thread started by a MERLD parent.[/quote]

Then stop posting here. The point of this facebook group referenced above is to avoid autism diagnoses. Many of the children have been diagnosed at one point with ASD and their parents shopped for a new diagnosis. They exclusively recommend the Camarats, who are fine, but Mary is literally a SLP - not a doctor or a psychologist. She is fine, and a good SLP, but there is nothing magic about her other than the fact that she diagnoses autism less often than others. The children she sees are not NT, and will likely never be, But their parents desperately want to avoid a "label" and believe that ABA is "damaging" - they also vaguely mention avoiding other types of therapy, even though the kids so often clearly need OT and behavioral help. They are hostile to recommendations that people get help or complete assessments even when children obviously have far more going on than language delays.  Bottom line: its a bunch of quackery crap that reassures desperate parents. I wouldn't care except some of those parents are not getting help their children desperately need because of their own issues.

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You are a perfect case in point about why the Facebook  MERLD group is so needed. [/quote]

No, I am not. My kid does not have ASD. But he did have receptive language issues, which is why I was once a member of the facebook group and so I know of what I speak, and has a low average IQ. I was never concerned about ASD BUT it is ridiculous to have the kind of fear mongering re ASD that goes on by the posters like you, and on that forum. It is discriminatory, not grounded in reality, and unhelpful to your disabled children. [/quote]

If you had gone to one of the Camarata's you would understand your child's needs better with receptive language and IQ.  Low IQ and receptive language issues generally mean a child will struggle more and the outcome is different than a child with receptive issues and a normal to high IQ.  One of the reasons to go is to get your child's IQ tested as few really can connect with kids and get a good non-verbal tests, including IQ.  So, to slam another family assuming your child is like theres is absolutely not true.  My child has a very good IQ so how he functions with receptive concerns and yours are going to be very different.[/quote]

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