Reply to Gettnig evaluated for PANDAS/PANS

Forum Index » Kids With Special Needs and Disabilities

Reply to "Gettnig evaluated for PANDAS/PANS"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous][quote=Anonymous]Treating a mycoplasma infection with an antibiotic is not questionable. Treating treatment resistant strep with a 30 day course of antibiotics is not experimental. Identifying a subclass immune deficiency (in addition to underlying PANDAS/ PANS) and treating both with HD IVIG is controversial.[/quote]

Treating an actual strep infection with an antibiotic is not questionable.  Giving long-term or prohylactic antibiotics is questionable.  And, the first line approach after an infection has been treated is CBT and and SSRI anyway ... basically same as any OCD treatment.  
[/quote]

To the person who keeps posting this stuff.  If you haven't been in our shoes then you don't know what it is like so keep your opinions to yourself.  The long term antibiotics help keep the pandas kids from picking up other infections or getting re-infected with strep, which if happens their bodies go haywire and their immune system starts attacking their brains.  My kid went from a normal 7 year old to overnight having huge tics, and other issues.  My kid is doing better, but even with meds whenever she is exposed to sickness her tics return or get worse, then comes the difficulty performing academically, sleeping, etc.  If it were only as easy as treating with CBT.  My kid doesn't have OCD symptoms.  Remarks like yours make it so hard for us to get treatment.  
[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics