Reply to 18 y.o. DD's mysterious brain ailment, advice please

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Reply to "18 y.o. DD's mysterious brain ailment, advice please "

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[quote=Anonymous][quote=Anonymous]I'm really out of my personal comfort zone here, but my husband is a pediatric rheumatologist and he sees lots of kids who have autoimmune flares after viruses. It seems to me that a single viral infection can set off an autoimmune disease. I wasn't going to even weigh in until you mentioned occasional joint swelling as well. This all sounds like something my husband deals with on a daily basis. It might be worth getting a referral.

I would also disagree with the poster who said rheumatologists are only good in their narrow field. That might be the case in some fields, but pediatric rheumatologists are like the Dr. House's of the profession. Don't know what's wrong with a patient? Send them to rheumatology because rheumatologists deal with inflammation anywhere in the body: bones, brain, eyes, muscles, skin, etc. They also deal frequently with diseases that cross over between the physical and mental - like pain disorders.

Good luck and trust your gut.
[/quote]

Thank you! This is a very helpful post.

We do have autoimmune diseases on both sides of our family, so you might be onto something.

I will find a pediatric rheumatologist (even though DD is now 18, this started when she was 17). It certainly can't hurt to explore this avenue. I would never have thought of this! [/quote]

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