Reply to October Due Dates: Please Join us!

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[quote=Anonymous]Poppy - thanks for the support. I am definitely kind of annoyed about the incorrect coding on the test order. So avoidable! The doctor mentioned one of the cell-free tests and said that it may not be covered by insurance. I am open to trying it but my husband is starting to feel like we should just stop with the testing as we both agree that we will not abort because of DS.

Thanks sleepy - glad to hear you are less sleepy! I am still a little sleepy myself haha

Pumpkin - Thanks so much for your post. I do appreciate it. I was definitely googling up a storm tonight and came across that information regarding due dates and inaccuracies in the testing. I had mentioned to my husband that if I knew of that issue, I would have never elected to get the test done in the first place, as I have felt all along that my due date they have is inaccurate. Initially I told them my LMP was 12/27 which yields a 10/3 due date. Then I told them later that I thought my LPM was actually 12/30, which would mean like 10/6. The baby always measured along the 10/3 due date or within a day or two, but for some reason one week they decided to set my due date as 10/10, just to have a standing point of reference. I have also always had an extremely irregular cycle so overall I really do not think the 10/10 date is accurate. I am kind of annoyed that I didn't know earlier how much that could affect the test results.

I did also look at a chart by age earlier and did note that the risk at 40 is one in 100. I was telling my husband that I find it very frustrating because all of the sudden I am told it is this risk and anything less than 1/250 is considered high-risk, but really we are still talking very small chances, even if the test is accurate. Overall if I had it to do again, I would not do the testing. I don't feel like the doctors explained the problems with the test well and I was naive enough not to really research it fully on my own. Being only 28, I really did not expect to get these kinds of results so I didn't spend a lot of time looking into them. I failed to think about how much stress this could cause!

I am actually a sped teacher and have cared for children with down syndrome. In some ways I realize it can be okay, but I also know some of the very real risks an then refreshed my memory today with some time on the internet.

Really what we have been worried about is autism as my brother-in-law has a preschooler with autism and there are not-well-understood genetic components to autism. This just feels like a whole new area to worry about.

I do plan to follow up with the genetic counselor with questions about the due date issue. Overall I think we will stop testing after this re-test. i just don't see how it will be helpful.

Thank you though for your kind words, it is helpful after a stressful day! [/quote]

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