Reply to s/o please stop derailing/diagnosis lawyering/etc

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][b]I have a child who is severely disabled and has no diagnosis. [/b] She is 10 years old.  You really have no idea what you are talking about.

Many families wait years or never get a diagnosis.

People are free to use whatever terms describe their situation -- especially since so many kids fall through the cracks.  Stop expecting order where there isn't any.  You sound like you have problems yourself.[/quote]

Maybe you missed the posts, but the poster was a mom with older children who never had them evaluated.  So you don't have a diagnosis is you never look either.[/quote]

How do you know they've never been evaluated?  If they are in speech therapy, in order at least for our insurance to pay, they have to be regularly evaluated.  Not all kids need a neuropsych.  We've never had one.  Big deal.  It isn't going to tell us anything more than the many other evaluations we have had.[/quote]

That's what the mother said.[/quote]

I am that mother! You misunderstood me. My older son has been evaluated by his pediatricians (several), ENT's, a half dozen SLP's, had a full scale WISC administered by a psychologist, and seen a neuroscientist who is an expert in apraxia. Everyone concluded that he seems to have low-ish time and multiple major articulation errors. All that and nobody knows why. So we focus on the what and thank God he is getting better with therapy and time. Same story to a lesser degree with ds2. [/quote]

You realize that evaluations are a form of intervention?  Also, you need a [b]full[/b] evaluation by a developmental pediatrician and/or a neuropsychological evaluation by a psychologist--not just the WISC.  Every professional you mentioned has extremely limited scope.  My guess is that you're trying to avoid a diagnosis.  [/quote]

Why do you NEED a an evaluation form a psychologist?  If your child has language issues, a psychologist is not trained in language issues so that would make no sense.[/quote]

Maybe because she is one. I can tell you that they have minimal training (a masters degree ) but strong opinions and a high opinion of themselves.
If your child really has a problem I'd head to the phd's and MD's.[/quote]

Some people with masters are far better as they have the 1-1 experience and expertise that a MD/PHD who are more of generalists have.  Those who evaluate are looking for checkboxes that fit your child.  They are not spending time getting to know your child and watch them grow and change.  We've been to a mix of specialists and our SLP is far the best out there (but we got lucky) and she really gets our child and does her therapy to my child's needs, changing it as he grows and masters new skills.  Having a one time few hour evaluation is far less meaningful (and we've had several).  And, when we have had our child evaluated, including recently, no one has anything to recommend beyond what we are doing.  My child's IQ is good, no learning disabilities, has friends and doing well overall at school.

But, based on what you are saying, we should keep evaluating to find the route cause, which doesn't really matter at this point nor can anyone tell us as we've tried.[/quote]

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