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Kids With Special Needs and Disabilities
Reply to "Feeling so blue...How to live with DD's chronic illness? "
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[quote=Anonymous][quote=Anonymous]One repeated suggestion has been to find a support group. So, here is the thing. We have a clear set of medical issues accepted by doctors but not a diagnosis per se. What is the best way to find a support group? Online searches? Are online groups useful for kids or do they have to be a group that they meet with in person? I have found a 1/2 day camp tonight, and have signed up both the kids. If older DD cannot go some days, thats OK. Younger DD will have something fun daily. So we have a plan for this week at least. Now for that vacation... [/quote] Can you ask your DDs doctor what diagnoses would be the nearest to the symptoms that your daughter is experiencing? Or choose the symptom that is most difficult for your family to manage (urgency?) and ask what diseases would also experience that symptom?[/quote]
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